Current research project supported by Arts Council England:
In-complete Bodies: Embodiment of film in choreographing illness and audiences. The proposed research project arises from my experience as a movement based performer/choreographer with a fatty acid oxidation disorder called CPT2 metabolic myopathy. CPT2 is an enzyme in the inner membrane of the mitochondria responsible for permitting fatty acids to enter the nucleus of the mitochondria and convert into energy. Due to this condition I always had to find ways of working with those deficient cells that limited not only my physicality and way of living, but also my identity. One of the main aims of the project is to to animate and inspire patients with genetic disease to find ways to transform physical limiting conditions into a positive, creative and inspiring expression through the arts; such as video making, creative writing and expression through movement. Their engagement with the arts through their body and the moving image will help them: -share their personal experience, -open people’s awareness on the health condition and -offer inspiration and stimulation to others that also need support. The exhibition/performance audiences engage with the work on both a physical, intellectual and emotional level. The intention of the exhibition is to promote understanding of the disease in all levels through both documentation and exhibition/performance. The ‘live exhibition’ aims to be ‘interactive’ in a way that audiences will be invited to participate physically in space. The research is partnered by London NHS (National Hospital for Neurology and Neurosurgery), supported by the National Institute for Medical Research and includes workshops with patients and discussions with specialists in all areas of study, culminating into an interactive exhibition/performance event in January 2015. Artists participants: Miriam King Clare Whistler Maria Papadomanolaki Andy Berriman Marina Tsartsara The above photos document the creative processes during our first two residencies in Brighton (2014)
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